NetSquared enables social benefit organizations to leverage the tools of the social web.

healthcare

Mobilizing Medical Records in Resource Poor Settings

Short Project Overview: 

We will develop software that enables health workers to utilize electronic medical records [EMR] remotely via SMS. We will use SIM-based mobile phones, and implement the project at clinics that serve more than 65,000 people in Peru and Burundi.

Detailed Project Overview: 

Mobilizing the medical record is a high impact opportunity, EMR adoption has direct and well documented health impact. However, EMRs are rarely implemented successfully in poor areas because of hardware that is expensive, unfamiliar, or unavailable locally, lack of internet and hassles associated with data re-entry. These issues can be address by SIM based phones.

  • EMR will be used more broadly and effectively if more health workers (not just physicians) gather and make use of medical data. Health workers are often out in the field where they do not directly contribute data to EMR.
  • Data collected off-site is often recorded on paper; it must be entered into a database by a different (more trained with computers) person, in a different place, at a different time. Unnecessary steps increase confusion, reduce efficiency and accuracy.
  • Patients currently do not remotely report health issues (I'm out of insulin needles, where can I get condoms?). This impeeds data collection in poor areas where transportation to a clinic may be a serious investment and many patients walk. Remote reporting would facilitate preventative medicine.

Our goal is to produce software that can:

  • Use SIM-based mobile phones. They are cheap, durable, prevalent, require less training and are less likely to make workers a target for theft/mugging (relative to smart phones).
  • Use OpenMRS, an open source EMR. OpenMRS manages hundreds of thousands of patients records; existing installations will be able to plug and play with our software, increasing our project's potential to scale.
  • Health workers or patients send data via SMS, it will be added to patient's medical record. Physicians will be notified of urgent situations (a hemorrhaging home-based childbirth), and worker/patient may receive SMS advice from clinician or an automated SMS based on electronic records.
  • Builds on, smooths interoperability with existing OSS like OpenRosa and Mesh4x.
  • Data transfer optimized for low-signal environments.

What else have you done in this area?: 

The greatest barrier to implementing distributed medical records is adapting organizational practices, not building software. Our development efforts will be put into action because our project was initiated and is being carried out by organizations that provide health care for the poor.

Health Bridges International has helped to develop and operate a clinic and community health care delivery program in the impoverished peri-urban communities of Alto Cayma, Peru.  The clinic consists of full time medical, dental, nursing, pharmacy and health education staffing.  In addition, the clinic has outreach workers who act as advocates in the communities (35k people total) to help identify the most marginalized populations and connect them to services.

Village Health Works is dedicated to the principle that all people, including the most oppressed and impoverished, are entitled to the highest standards of health care in their pursuit of happy and productive lives. VHW’s first project is to design, build, and operate a model community health clinic in Kigutu, Burundi. VHW serves about 30k people, regardless of ability to pay.

The primary directors of the project are two students, Isaac Holeman, a co-founder of Squarepeg, a N2Y3 featured project to help people find service and action opportunities on the Internet, and Daniel Bachhuber, the founder of Oregon Direct Action, an organization at the University of Oregon that is developing an open source organizational model for student groups.

Is there a video that helps describe your Project? If so, enter the embed code here: 
Organization supporting your Project, if any: 
Village Health Works
Supporting Organization URL: 
http://villagehealthworks.org/
City: 
Kigutu
Country: 
Burundi
Does your Project have financial support?: 
No
Is the impact area of your Project global?: 
Yes
If no, what country(s) does it impact?: 
Burundi
Peru
Type of expertise needed: 
Technical Expertise
Description: 

Additional tech development help would be quite nice!

Sustainability (financial) Model: 

This project requires only minimal seed funding to get off the ground. Once it is functional, it will be supported by the organizations that use it. These include health care organizations like Village Health Works and Health Bridges International, and open source communities like OpenMRS and OpenROSA.

Additional Project Idea Representative NetSquared User Name: 
iholeman

"Block Party" NeighborSourcing

What will change in the world because this Project happens?: 

Once upon a time, we all knew our neighbors.

We knew Daisy, the golden retriever addicted to soggy tennis balls. We knew the saggy sofa in the den, stained by one too many Strawberry Jello spills by the kids. We knew the noise of the lawnmower, the squeek of the garage door or the buzz of the doorbell. We knew just when we'd hear footsteps slogging up the stairway or when the elevator would ping open.

Now. in all too many cases, we only see 'neighborhood' on Sunday nights via Desperate Housewives or via Big Brother.

One of the best things about knowing your neighbors was knowing things like which house has the twins with chicken pox . . . which street has a couple of persistent gushers bubbling up . . . who has been 'down' with the flu or fighting breast cancer . . what new building/development is going on . . is that creek still flowing or drying up . . .

If we all still had BLOCK PARTIES, yes, that remnant of the 50's or 60's or whatever Leave It To Beaver era in which those organic mob-projects occurred, maybe we would have enough information to protect us and each other.

Yes, there are a wide variety of domestic and international public health/service agencies that track disease, safety issues, environmental trends, etc. But there are certainly legions of examples of why perhaps even the most ethical of public or corporate organizations seldom tell the whole or even the most realistic stories.

Which is why we must tap into the power of citizen journalism . . . or Neighbor-Sourcing to complete a realistic picture of health trends of all kinds, from traditional health care issues (including insurance) to environmental and safety. By harvesting glocallogy tools such as mapping, crowdsourcing and even crowdfunding, we may be able to act more quickly on trends, problems -- or opportunities -- as they occur. We need not wait for the government to announce issues long after it is too late to do something.

What information will people interact with to make this change?: 

Neighbor-Sourcing info on a variety of significant local concerns and opportunities which allows 'Block Party' reporting to be transformed into relevant maps and or RSS notifications of urgent/pending issues.

What else have you done in this Cause Area?: 

As the 'guru of new', I have a rich, robust background in new product development, including participating in a number of incubators -- most notably as one of the first members of AOL's pioneering Greenhouse back in the dinosaur days of the 'Internets.' (I actually have a print-out of an email from Al Gore, once know as Auto-Al, for those of trying to get our projects launched with White House support.)

I have long experience in the health care category as well, working with hospitals, pharmaceuticals, physicians, etc.

And I live in a small town neighborhood environment in the sticks of Carmel Valley. But I still don't know many of my neighbors.

Is there a video that helps describe your Project? If so, enter the embed code here: 
Does your Project have financial support?: 
No
What kind of help or resources do you need to turn your project idea into a completed mashup?: 

A complete team + neighbors.

CareFlash... Community when it matters most

Project URL: 
http://www.careflash.com/
What will change in the world because this Project happens?: 

CareFlash delivers unprecedented healthcare advocacy and education to people in the richest circumstances imaginable, while offering philanthropic benefits to healthcare foundations, advocacy groups and religious institutions. This mashup integrates advocacy, animations, medical info and web 2.0.

When someone learns they (or their loved one) have been diagnosed with a chronic healthcare challenge, a flurry of painful emotions appear ranging from fear and feelings of aloneness, to anxiety, uncertainty and even depression. As families navigate this experience together, it commonly becomes clear that people are unprepared and inexperienced at the realities of serving as caretakers. We address these challenges, empowering users to:

Post updates in a private blog, which are automatically sent via email to the community members. These CareFlashes can eliminate 30-40 conversations a day for a caretaker, freeing them to provide substantial attention to the patient. CareFlash recipients can reply to the messages and updates with well-wishes, prayers and messages of support. It’s common where the family pastor will engage in these exchanges, bringing strength and faith to all involved.

Educate people on the particular disorder at hand, specific treatment options, and other health concerns through easy to understand 3-D animations, produced by Blausen Medical, the best interactive medical resources available anywhere. They are narrated in everyday English, Spanish and other languages and encompass hundreds of healthcare topics ranging from pregnancy and neonatal issues to cancer, cardiovascular, ears/eyes, neurological, genetic, bladder/kidney, digestive/mouth, endocrine, blood/immune, respiratory, orthopedic, skin/cosmetic and others.

When medical challenges happen, help is continually needed. But egos get in the way, no one wants to be intrusive and, although everyone says “If there’s anything we can do, please let us know…” asking for help is awkward. When help is needed with errands, meals and countless other tasks, entries are easily created allowing people to sign-up to help. Our iHelp Calendar helps ensure that tasks are met when and where it’s convenient for the members, saving the patient from experiences like having 3 families show up with meals one evening or visitation when the patient needs privacy.

What information will people interact with to make this change?: 

To effect this change, CareFlash provides people the ability to interact through a framework to manage all of the moving parts where healthcare circumstances present themselves to a person and their community.


Cancer

Today alone, 5,400 people in the U.S. learned that they have been diagnosed with cancer. 21 million are currently battling diabetes. 10% of people aged 60 years old have Alzheimer's... and this figure grows exponentially as the 80 million baby boomers continue to age. Across the board, the numbers are scary. CareFlash works through healthcare advocacy groups to assist them in serving people based on the specific circumstances at hand.

What else have you done in this Cause Area?: 

The founder of CareFlash spoke at NetSquared Houston in December and, since then, we have formed alliances with the Houston chapter's January and February meeting speakers. Ms. Wheelchair Texas (Jan) and AIDS Foundation Houston (Feb) both deliver highly compelling value, as healthcare advocacy groups, to people in circumstances that really matter. Where life is celebrated, community is engaged, and the quality of life for patients and caretakers are all dramatically improved... CareFlash is the virtual glue that brings this all together... and does so for free.


AIDS

Is there a video that helps describe your Project? If so, enter the embed code here: 
Project RSS Feed: 
http://www.careflash.com/blog/
Does your Project have financial support?: 
Yes
What kind of help or resources do you need to turn your project idea into a completed mashup?: 

Input on ways we can be more effective at leveraging other components in our mashup. More independent bloggers (a la a Digg-based model that we're developing), healthcare advocacy groups and healthcare institutions.

Sponsors

  • Microsoft
  • Yahoo
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  • Raincity Studios
  • Mozilla Foundation
  • Ready Talk
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  • Adobe
  • Linden Lab
  • Network For Good
  • Wild Apricot
  • Stanford Social Innovation Review
  • L'Atelier North America
  • The Panelist
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  • Fora.tv
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